Fonte: New York Post
A Long Island dad fighting to save the only research lab that he says can treat his 5-year-old son’s rare genetic disorder has finally won his battle with Congress. House Speaker Mike Johnson on Friday signed the long-stalled bipartisan Small Business Innovation Research Act to free up funding for the Queens lab treating Merrick resident Andrew Jedlicka’s son — sending the bill to President Trump’s desk for hopefully final passage. “I’m relieved that it finally reached the president’s desk, and I hope that it is signed into law very soon so that we can continue the great work we’re doing for the KBG community,” Jedlicka told The Post 4 “I’m relieved that it finally reached the president’s desk,” Andrew Jedlicka told The Post of the funding bill.
